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SSBP 26th International Research Symposium

Educational Day - 5 Sep 2024

Research Symposium - 6-7 Sep 2024

Bali, Indonesia

Online Abstract Submission

Deadline – 15th May 2024

Online Registration

Earlybird Deadline – 26th July 2024

SSBP December Travel Grant - Deadline Extension

Applications for the December 2023 round of travel grants will be accepted until midday (UK time) on 29th December.

 

For details of eligibility and to submit an application, please go to the Travel Grants page

Obituary - Professor William Yule

It is with great sadness we report the death of Bill Yule who died suddenly but peacefully at home on November 5th, 2023.

Bill will be fondly remembered by generations of clinical psychologists and psychiatrists far beyond the UK and his influence on child psychology, both clinical and research, has been enormous. In the UK he was head of clinical psychology services at the Bethlem Royal and Maudsley Hospitals Special Health Authority for many years. He held the Chair in Clinical Psychology (as Professor of Applied Child Psychology) from 1987 until his retirement in 2005, since when he continued as Emeritus Professor of Applied Child Psychology.

Bill’s dedication to clinical psychology encompassed many different areas. In the 1960’s, his research with Michael Rutter, Jack Tizard and others on educational, psychiatric and physical disorders in school-age children on the Isle of Wight was a landmark in the development of epidemiological child psychiatry and psychology. Subsequently he became recognised world-wide for his ground-breaking work on interventions for children suffering from war and tragedy. His involvement in post-traumatic stress disorder among children began with the sinking of the Herald of Free Enterprise ferry in 1987. Sadly, since then, there has been no diminution in the numbers of children exposed to profound loss and disaster and his work has helped thousands with war-related traumas.  During the 1980’s and 1990’s Bill was a member of the British Health Expert Group developing trauma treatments for children affected by the Sri Lankan civil war, and he was an advisor to UNICEF during the civil war in the former Yugoslavia. Most recently he was involved in training Ukrainian mental health professionals to use the Teaching Recovery Techniques (TRT) intervention which has now been formally adopted by the Ukrainian Ministry of Science and Education.  Bill was a founding trustee of the Children and War Foundation, dedicated to improving children’s lives in wars and disasters, and in 2005 he received a lifetime achievement award from the International Society for the Study of Traumatic Stress for his work with children. (For more details see his obituary in the London Times   https://www.thetimes.co.uk/article/professor-william-yule-vbm5087cr)

For members of the SSBP, Bill will also be warmly remembered for all his work in helping to found the Society.  Throughout the early decades of the 20th century, although the genetic basis of more and more developmental disorders was beginning to be identified, individuals with intellectual disabilities still tended to be regarded, and treated, as if they were a homogeneous group. To counter this view, Bill, with  Greg O’Brien, Jim Harris, Tom Oppé, Martin Bax and others in the 1980’s,  began to highlight the importance of recognising the very different cognitive and behavioural profiles, needs, and outcomes of children with a range of developmental and genetic disorders.  Together they were instrumental in setting up the SSBP in 1987, with the goal of fostering research and developing new genetic and scientific approaches for improving clinical practice and interventions for individuals with many different behavioural and genetic phenotypes. By 1991, Bill and his colleagues had organised the first SSBP conference in London; twenty-three annual meetings, spanning much of the world, have followed to date. In 1996, Bill and Greg O’Brien edited the book “Behavioural Phenotypes”, with contributions from several other SSBP members, summarising advances in the identification, understanding and treatment of individuals with genetic and developmental  disorders. 

Bill attended numerous meetings of the society and has been an honorary member for many years. He leaves behind a legacy of huge breadth and depth and, without his enthusiasm, initiative and collaborative work with colleagues from across the globe, the SSBP might never have existed.

Bill Yule, with founding members of the SSBP

Bill Yule
Tom Oppé
Tom Oppé
Martin Bax
Greg O'Brien
Jim Harris

Save the Date - SSBP in Bali, 2024

We are excited to announce that The Society for the Study of Behavioural Phenotypes will be holding their 26th International Research Symposium, in Bali, Indonesia on the 6th and 7th September 2024. The Educational Day will be held on 5th September. The theme will be: Early identification and treatment of genetic and neurodevelopmental disorders.

 

We welcome you to Bali, the Island of Gods! Well-known as ‘The Last Paradise on Earth’, Bali showcases endless beautiful scenery, complete with the Balinese hospitality and cultural diversity that all visitors can experience in every corner of the Island.

SSBP in Oslo 2022

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Photos by FRAMBU Media (Oslo Conference Centre), and Richard Milani (Oslo City Hall Reception)

SSBP in Birmingham 2019

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What Happens at an SSBP Conference?

Siena Conference, Italy 2016

honey

A message from the Chair of the SSBP

Welcome to the website of the Society for the Study of Behavioural Phenotypes (SSBP). The SSBP believes that progress in understanding the behavioural features associated with often complex genetic conditions is best served by providing a focus and point of contact for medical researchers and health care professionals working with those whose lives are affected by these conditions.


On our website and the linked SSBP Conference website you will find information about a wide range of syndromes and about the activities of the SSBP including our annual international research symposium, with its associated Education Days reaching out to the wider community of patients and their families.


Honey Heussler

SSBP Chair

Our Affiliated Member Societies

The SSBP is pleased to be affiliated with these member societies.

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Fragile X Society

Fragile X Syndrome is the most common inherited cause of learning disability. The Fragile X Society provides information and practical guidance to support and empower individuals and families living with Fragile X, and the professionals who support them. We also support research in order to improve support and understanding of all aspects of Fragile X.

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Max Appeal

Max Appeal’s mission is to enable people with 22q11 syndromes to lead an independent and economically prosperous life as possible with Max Appeal being the voice to achieve appropriate medical care, social support, employment and empowerment for individuals and their families.